Openly Autistic
I read an article about Haley Moss, an autistic woman who passed the Florida Bar. (Link to her page and the article I read are below. Go check out her stuff.) The article mentioned that she is the first “openly autistic” person to practice law in Florida.
That phrase struck me. “Openly autistic.”
As someone who did not know I was on the autism spectrum until 5 months ago, I have never lived my life as “openly autistic” before now. I have always known that I’m different. I mean, we’re all different, right? I’ve always felt weird. I know people who are not on the spectrum can be quirky and socially awkward, but there’s something about being on the spectrum that is different.
My whole life I felt like I was “pretending to be normal.” Whatever “normal” was. I could never figure it out. I remember going back to my college campus after Christmas break my freshman year and thinking, “I’m going to have to re-learn how to be social with all of the people at college again, even with my friends! Being home for the last two weeks has made me forget everything I’ve picked up on how to be social with people!”
It’s funny because people would meet me when I was a kid and talk about how mature I was, and how intelligent and stuff. I’ve always felt like I wasn’t getting what was said in the conversation, so I just listened most of the time.
I used to people watch a lot when I was out shopping. Especially growing up. I’d sit in the car and watch people in the parking lot while I listened to my cd, or while looking up from my book (because who wants to go in a store and be around random people when you have perfectly good music to listen to or a book to read?) I’d watch how they were dressed, how they carried themselves, how they interacted with others. Going to the mall has always been an adventure of sorts, because you see all the characters there. People shuffling around like peacocks, dressed up in whatever costume they wear to make themselves different from everybody else, while they all go to the same stores to buy the same things, just to look the same way so they can express their individuality. I’ve always been a jeans and t-shirt girl, myself. I never really understood the social aspects of putting on the “costume” to be around people. I still don’t, really.
I would watch tv and pay attention to how people carried on a conversation and wonder why I couldn’t be like that. But the difference between real life and tv is that the actors are acting, they’re following a script, they’re reciting lines. Real life doesn’t have a script to follow during conversation.
I’ve always tried to be “normal.” I have tried to fit in. It’s usually the social aspects that I’ve had trouble with. Some sensory stuff, too. I was encouraged by my friends in college to walk barefoot in the grass. I’m a tenderfoot. I also cannot stand having dirt or grit or little pebbles or bark stuck to my feet. It’s too much sensory input and it makes me kind of freeze and tense up. I’m sure I looked like a twitchy t-rex trying to walk through the grass. I got a pair of Vibram Five Fingers later that year (after years of longing for a pair) and solved the walking barefoot without getting anything on my feet conundrum.
I guess all of this to say that I’ve probably always appeared different, even though I’ve tried to “mask” before I knew what “masking” was. If you don’t know, it’s when an autistic person attempts to appear neurotypical, or not autistic. I can try to feign getting the joke. I can pick up on what particular facial expressions or verbiage means if I get a minute to think about it, and if I don’t, then I follow the lead of others around me and how they’re reacting to something. I can pretend I know what you just said, when all I heard was the background noise and the strange sound beyond the background noice that seems out of place but doesn’t seem to be bothering anyone else. I can walk out my door every morning wondering, “What am I doing and what would people would do if they found out how much I think I don’t know what I’m doing,” but still go do it anyway.
I can mask. I have to mask. Don’t I?
I mean, neurotypical people do it to some degree, especially an introverted one attempting to be social. I like being around people, but get exhausted being around people sometimes if all I’ve done is try to fit in and keep up. (I’m an ambivert, though, so I do have aspects of introvert and extrovert tendencies.)
But, being autistic, I should always be pretending to be neurotypical so I can fit in, right?
Since I was diagnosed autistic, I have gotten a little more brave in being “openly autistic” as I’ve learned what parts of autism affect me.
I haven’t been as afraid to ask for the music to be turned down in a restaurant, or to request seating that makes it easier to have a conversation with the person I’m with. I’ve worn my earplugs in the grocery store when I was having a day where I was easily irritated and every single noise was slowly scraping away at my last nerve and I really didn’t want to hit meltdown stage. Although I’ve become extremely self-conscious of it since learning more about autism and how some of the differences present themselves, I will force myself to not focus on how I hold my hands when I walk, which sometimes ends up with me holding my arms in the “autistic raptor hands” position. (At least if I were on a shooting range in competition, I’d be standing at ready? [random dream of mine to be able to participate in a shooting competition.] Also, holding my hands down to my sides while I walk has always seemed awkward.) I’ve started to try to consciously take my time to respond to people in conversation and just ask them what they meant if I didn’t understand them. I’ve left a building for a few minutes to stand in the cold air outside when I’ve become overwhelmed by the crowd, temperature, and noise level inside the building, and I’m trying to avoid a meltdown.
I am still being social. I am still being me. I can still do my work. I can still do the everyday things that I do.
But now I can allow myself to be free to not worry about appearing “normal.”
To “take the mask off.”
To ask for assistance when I need it.
To move myself physically away from a situation that past experience tells me tends to lead to a meltdown.
Now I can be free to explain why I’ve acted in a certain way (though there are things I’ve been working on, I can at least recognize things now, and explain the why behind my actions, even if it’s something I’d rather not do, like have a meltdown.)
To share with others that some of my greatest strengths are in part due to being autistic.
To work on changing the behaviors I don’t want for myself, and work on keeping the things I do want. (Not in trying to mask, but to try to be a better person and to be more authentic to how God created me.)
Now I can be free to be me.
I’m honestly not even sure this post has made much sense. Just another list of the things that make me different, and trying to figure things out. 💜
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https://m.facebook.com/HaleyMossART/
https://www.sun-sentinel.com/local/broward/parkland/fl-cn-parkland-haley-moss-florida-bar-20190206-story.html
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Sun Sentinel article on Haley Moss